Expressing support for the designation of June 19, 2025, as "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.

Key Provisions

• Supports June 19, 2025, as "World Sickle Cell Awareness Day" to raise public awareness.
• Commits to making sure new sickle cell disease (SCD) treatments are available to all economic, racial, and ethnic groups.
• Calls on the Department of Health and Human Services to create global policies for SCD support, including newborn screenings and treatments.
• Supports removing hurdles for vulnerable patients on Medicare and Medicaid to get innovative SCD therapies.
• Encourages the President to form a federal group of agencies to improve access to SCD treatments.
• Urges this federal group to address the bias faced by people with SCD in healthcare systems.